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UID:359@mountainviewstake.org
DTSTART;TZID=America/Phoenix:20250627T080000
DTEND;TZID=America/Phoenix:20250628T170000
DTSTAMP:20250616T163635Z
URL:https://mountainviewstake.org/events/prader-willi-syndrome-national-co
 nvention-2-days-june-27-28-2025/
SUMMARY:Prader-Willi Syndrome National Convention 2 days June 27\, 28 2025 
 www.JustServe.org
DESCRIPTION:JustServe Project Details\n\n\nWe are excited for volunteers (1
 8 &amp\; older) to learn about Prader-Willi syndrome (PWS) and have a wond
 erful time with these amazing families. PWS is a complex syndrome manifest
 ing on the 15th chromosome that brings cognitive impairment\, weak muscle 
 tone\, and most interestingly and hard\, an insatiable appetite and food s
 eeking.\n\nYou will work directly with children and adults with PWS along 
 with wonderfully trained support\, allowing their parents to attend traini
 ng classes.  The families will be coming from all over the world\, but mo
 stly from the United States.\n\nThe conference will be held at the Arizona
  Grand Resort &amp\; Spa:  8000 S. Arizona Grand Parkway\, Phoenix\, AZ 8
 5044.  Parking vouchers\, T-Shirts\, lunch and snacks are provided.\n\nVo
 lunteers are needed on Friday and Saturday\, June 27 &amp\; 28\, 2025\, fr
 om 8:00 a.m. to 5:00 p.m. for the programs for children (siblings and chil
 dren with PWS) and adults with PWS.  We'd love it if you could volunteer 
 both days\, but one day is also great!  (Click on the date(s) you are ava
 ilable on the calendar when volunteering). \n\nHere is the JustServe link
 \;\nhttps://www.justserve.org/projects/c98ea989-9dbf-4c54-bb6d-7121edf6499
 c/prader-willi-syndrome-national-convention?shiftId=fe5177a8-3754-4c37-972
 d-8e17f3b513eb\n\nVolunteers are needed for these fun groups:\n\nLittle Ti
 kes (6 weeks - 2 years):  There will be trained staff and nurses working 
 with the children.  Volunteers will primarily interact with the children 
 during their activities and never be left alone and will not have to do an
 y toileting or changing of diapers.\n\nJunior Camp (Ages 2 years - 6 years
 ):  Volunteers will primarily interact with the children and help with ac
 tivities and crafts.  Volunteers will not have to change children.\n\nAdv
 enture Camp (Ages 7-70+):  Volunteers will help with activities along wit
 h a trained staff.\n\nSibling Camp (Ages 7-12):  Volunteers will interact
  with the children and help with facilitating activities.\n\nYou will love
  these kids and always remember this experience!\n\nHere is a link to a sh
 ort video from a prior Prader-Willi conference:\n\nhttps://www.youtube.com
 /watch?v=Nld4jkMudW4&amp\;t=2s\n\nContact Lisa Thornton 801-556-8012 with 
 any questions.\n\n&nbsp\;\n\n\n\nLocation Details\n8000 Arizona Grand Park
 way\, Phoenix\, Arizona 85044\, USA\n\n\n\n\n\nLisa Thornton\n801-556-8012
 \nlisathornton@upwsa.org\n
ATTACH;FMTTYPE=image/jpeg:https://mountainviewstake.org/wp-content/uploads
 /2025/06/Prader-Willi.jpeg
LOCATION:Arizona Grand Resort & Spa\,  8000 S. Arizona Grand Parkway\, Phoe
 nix\, AZ\, 85044\, United States
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS= 8000 S. Arizona Grand Park
 way\, Phoenix\, AZ\, 85044\, United States;X-APPLE-RADIUS=100;X-TITLE=Ariz
 ona Grand Resort & Spa:geo:0,0
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